POTS and neck problem

So my Orthogonal Intolerance is getting worse. It started 2 months ago and now I am flat or nearly flat for 22 hours a day or more. I do this to try to lower the malaise, and not to crash, and I have heard here that rest and not pushing and crashing is super important. My pulse is starting to rise resently when I stand up, maybe from 80 to 110 or 120, not sure. Sometimes I can raise my head a little to be in computer, sometimes not.

I feel fresh generally. But I feel weakness in arms, hands...

POTS and neck problem