Ivabradine = Heart Pain + Sleep Adrenaline
Hey, I've been taking Ivabradine at various doses for 3 weeks. Depending on the dosage I go a few days feeling better then I start to get short stabby pains in my heart and left arm and leg veins. At...
View ArticleResearch on how adrenergic & muscarinic receptor antibodies cause symptoms in...
Research on POTS, OH and CFS shows that many have elevated adrenergic or cholinergic (muscarinic or nicotinic) receptor antibodies. This thread is to discuss research on: How do these antibodies relate...
View ArticleCompression pants alleviating POTS
I stumbled upon this Reddit thread today regarding compression pants alleviating POTS: https://www.reddit.com/r/POTS/comments/dujtxf He used Roadbox Men's Compression Pants according to the thread.
View ArticleDehydration
I found out that I have likely been chronically dehydrated - even drinking 2 litres inc electrolytes every day! One day I retained zero fluid. Now drinking 3.5 to 4 litres with about half of that using...
View ArticleIf you have weak adrenals and/or POTS see this
Here is a link to a fascinating video about how the sodium/potassium pump works and shows the importance of the balance of sodium and potassium needed for cells to function properly. Also ATP is...
View ArticleAnyone reacts to foods high in choline and lecithin?
I seem to react negatively to any foods that contain a slight higher amount of choline and lecithin. Causes neurological problems like confusion, shoulder tics, anxiety etc... Anyone facing similar...
View ArticlePON1 mutations, Excess acetylcholine, excess Adrenaline
I have realized a lot of my problems have been due to excess acetylcholine. SSRI'S are anticholinergic so they helped me to great extent but not completely. However SSRI'S only target the muscarnic...
View ArticleYohimbe for Orhtostatic Intolerance?
My naturopath had me start this a few weeks ago and it is helping. My low blood pressure is quite severe and the Yohimbe seems to help some. Anyone else? I read that it's not for long term use, which...
View ArticleShould I suggest Pots to the GP based on this ?
Hi, I am a new member searching for some information. I just recently (last few days) heard of PoTS. I was searching for answers to an array of symptoms which my almost 15yo daughter has been...
View ArticleFlorinef stopped working?
Hey, Has anyone been on Florinef for so long and it stopped working? I've been on it 3-4 years and it's gradually got down to the point where my symptoms are back to how they used to be. My sodium was...
View ArticlePOTS and neck problem
So my Orthogonal Intolerance is getting worse. It started 2 months ago and now I am flat or nearly flat for 22 hours a day or more. I do this to try to lower the malaise, and not to crash, and I have...
View ArticleCan dysautonomia be reversed?
I think im just looking for some hope here. My dysautonomia never let's me sleep. As soon as I start drifting off I'm shot awake by a shot of adrenaline and it's just that way the whole night. I never...
View ArticleClinical Trial: IV Albumin for Severe POTS
A Double Blind Randomized Controlled Crossover Study to Systematically Assess the Efficacy and Safety of Intravenous Albumin Infusions in Severe Postural Orthostatic Tachycardia Syndrome POTS is...
View ArticleDo you have POTS and undiagnosed abdominal pain?
Hi, PheonixRisers, Due to a rapid decline in physical health, I find myself spending far too much time researching and reading about medical conditions these days. Somehow I chanced upon the following...
View ArticleIvabradine - advice on starting low and going slow. Anyone else managed to...
Just wondering how you guys who are incredibly sensitive approach this. This drug is supposed to be taken twice per day. I couldn't handle 2.5mg dose so doctor has recommended trying me on tiny...
View ArticleIs absorption of transdermal thiamine comparable to injection?
Hi all... Been reading about thiamine for dysautonomia, neuropathy, and anxiety. Reading about Benfotiamine, too. Research says one can't absorb much thiamine from the intestinal tract if over 40 (am...
View ArticleARA-290
Anyone tried ARA-290 yet? I am going to start this with a few other patients in about two months, waiting on custom snythesis to finish. I think this would be the only possible Gamechanger for POTS/OI...
View ArticleDysautonomia Conference
Starting today, free online, in case you didn't see Cort's article about it: https://www.healthrising.org/blog/2020/10/12/dysautonomia-international-conference-alberta-pain/ It looks like there will be...
View ArticleAnyone resolved blood pooling?
This is my biggest problem. If I can fix this, I think that I would be in much better shape. I have Pectus Excavatum which can mimic POTS and I think I will have to do the NUSS procedure in the hopes...
View ArticleDriscoll Theory Approach
Has anyone used the Driscoll Theory approach or taken Parasym Plus to treat POTS/ fatigue? I'm reading her book and she describes me to a T but am having trouble finding many reviews of her supplements...
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