Midodrine and Lying Down
I started taking midodrine yesterday. I'm after input from people who have ME and POTS and take midodrine. When you take it you're not meant to lie down for 4 hours. Now for me that's quite a long time...
View ArticleCardiopulmonary responses to exercise in an individual with ME/CFS during...
Cardiopulmonary responses to exercise in an individual with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome during long-term treatment with intravenous saline: A case study Article type: Research...
View ArticleClinical benefit of midodrine hydrochloride in symptomatic orthostatic...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4951503/ (open access) Clinical benefit of midodrine hydrochloride in symptomatic orthostatic hypotension: a phase 4, double-blind, placebo-controlled,...
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Poll: Mestinon Trial
A bit late, but I promised to report about Mestinon Trial (@echobravo) My new GP takes M.E. seriously. Not only that, he allows me to trial Mestinon without going through a specialist which would be...
View ArticleHow long does Mestinon take to work?
I have been taking Mestinon during the last three weeks (120 mg/day) with no effect on my symptoms. In view of this, my doctor (who is not familiarized with MECFS or POTS) thinks that I should give up...
View ArticlePOTS with low BP, BP rise on standing, and metoprolol
I know that I can't ask for medical advice here, but I'm hoping that someone has been in a similar situation and share their experiences. I have POTS, and my doctor has prescribed 12.5mg of metoprolol...
View ArticleCatheter-Based Cardio-Neural Ablation for Refractory Vasovagal Syncope
Catheter-Based Cardio-Neural Ablation for Refractory Vasovagal Syncope Abstract and Figures Click to expand... We highlight the feasibility and efficacy of a new application for catheter ablation to...
View ArticleCan POTS cause heart palpitations (at night) ?
A couple of years ago, and just recently, I've experienced irregular heartbeat and a racing heart rate. This happens at night when I wake up and need to go to the bathroom. If I don't get up very...
View ArticleARA-290
Anyone tried ARA-290 yet? I am going to start this with a few other patients in about two months, waiting on custom snythesis to finish. I think this would be the only possible Gamechanger for POTS/OI...
View ArticleDifference between nitroglycerine sublingual and tablets for anginal pain etc?
I have OI that has worsened. I have these new symptoms that starts with shortness of breath before I get this pressing heavy feeling in my left chest. Tried nitroglycerine sublingual spray a while back...
View ArticleAnyone had any benefit from taking NattoKinase ?
My doctor recommended Nattokinase (by NuMedica) , this is in connection with TOS. Apparently it helps blood flow. Anyone here got any benefit from this supplement? There are a few brands out there, my...
View ArticleSalt tabs: Favorite brands? Dosage?
It turns out that, after a lifetime of trying to minimize salt, it's really hard to take in enough sodium just through my diet! It's too bad that I find V8 rather nauseating. My doctor suggested salt...
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View ArticleM.E./POTS - Treatments, medications, protocols to increase fluid retention,...
Not another thread from me complaining about my ongoing thirst, frequent urination and dehydration....but at this point I am certain my general symptoms are caused by low blood volume or some for of...
View ArticleHas anyone had Midodrine make them sedated like a sleeping pill?
I couldn't find a thread on this particular aspect of Midodrine and really wanted to get some feedback. I was started on Midodrine by my new cardiologist in the hospital, first at 2.5 mg 2x/day and now...
View ArticleAnyone resolved blood pooling?
This is my biggest problem. If I can fix this, I think that I would be in much better shape. I have Pectus Excavatum which can mimic POTS and I think I will have to do the NUSS procedure in the hopes...
View ArticlePOTS - has anyone found "slow salt" supplements helpful (or tried saline drip...
I've been listening to a UK doctor on Youtube called Dr.Sanjay Gupta, and some of what he's saying is resonating with me. I'll be attempting to hydrate well, e.g. with sole water,... Dr.Gupta mentioned...
View ArticleAcetylcholine - How do POTS sufferers maintain good levels of it ?
As a POTS sufferer I am trying to maintain a good level of acetylcholine to help boost cognitive function. I've found Acetyl-l-Carnitine plus a source of choline to be really helpful. However, my body...
View ArticleAnyone found treatments that resolve/help orthostatic hypertension?
Hi everyone I know there have been various threads discussing the ins and outs of why BP goes up or down for ME/CFS patients. This thread is for anyone who has found a treatment, whether medication or...
View ArticleAnyone got tips on how to calm down heart palpitations quickly (POTS) ?
Past few nights I've had about 40mins of heart palpitations as I lie down to sleep. This is a recent occurrence - it happened a few years ago too - I think its because I've been physically inactive due...
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